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Adults with I/DD in Hospitals – A Call for Change

The Current Reality

Emergency rooms can be some of the most overwhelming and dangerous places for adults with I/DD. Families often report being sent home without adequate care, ignored by staff, or misunderstood in crisis situations.

Why This Happens

  • Lack of Training: Many medical staff have little education on disabilities beyond pediatrics.
  • Communication Gaps: Non-speaking patients are often overlooked or treated as incapable.
  • Systemic Barriers: No policies in place for accommodating sensory needs, communication supports, or longer appointment times.

What Needs to Change

  • Hospital Training: Every ER staff member should receive disability-inclusive training.
  • Policy Shifts: Clear guidelines for supporting adults with I/DD.
  • Family Inclusion: Families and caregivers must be recognized as vital partners, not dismissed as “overreacting.”

Takeaway: Adults with I/DD deserve equitable, competent, and respectful healthcare. Hospitals must commit to systemic change to truly serve this population.

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Alena Kumta OTR/L

Alena Kumta MS, OTR/L is joyfully invested in supporting individuals & families in transforming —development, meaningful participation, confidence and connection —through play, child/individual-led interests, connection/shared joy, and seeing/embracing/supporting individual strengths & differences.

Alena has held a wide range of roles as an OT including mental health, early childhood intensive mental health, school-based, nature-based, early intervention, home health, inpatient, and outpatient/clinic based care. Alena has her masters in Occupational Therapy from Stockton University and a BFA in Fine Arts from School of Visual Arts NYC. 

Alena has advanced training in; DIR Floortime (proficient provider), emotional regulation, trauma informed care & ACEs, social emotional learning, sensory integration, feeding therapy, pediatric pelvic health, nature based therapy, and continues to learn and grow her skills. 

When she’s not enjoying her work as an OT- Alena  is spending time with her dog-Violet, being in nature, playing in the garden, foraging, making art, getting movement, helping at Ceto Coffee Roasters, and learning new things!

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