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Adults with I/DD in Hospitals – A Call for Change

The Current Reality

Emergency rooms can be some of the most overwhelming and dangerous places for adults with I/DD. Families often report being sent home without adequate care, ignored by staff, or misunderstood in crisis situations.

Why This Happens

  • Lack of Training: Many medical staff have little education on disabilities beyond pediatrics.
  • Communication Gaps: Non-speaking patients are often overlooked or treated as incapable.
  • Systemic Barriers: No policies in place for accommodating sensory needs, communication supports, or longer appointment times.

What Needs to Change

  • Hospital Training: Every ER staff member should receive disability-inclusive training.
  • Policy Shifts: Clear guidelines for supporting adults with I/DD.
  • Family Inclusion: Families and caregivers must be recognized as vital partners, not dismissed as “overreacting.”

Takeaway: Adults with I/DD deserve equitable, competent, and respectful healthcare. Hospitals must commit to systemic change to truly serve this population.

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